GA and annual meeting in Sardinia June 16-18, 2017

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Euro-HSP Annual Meeting

June 17, 2017 - 9:00 to 13:00.

 

Place: Hotel Catalunya, Via Catalogna 22, Alghero (SS) Italy


 

Agenda:

 

09:00                   Welcome and introductions                                            
  Reports from the national associations
   
10:00   Presentations:
 
  • Professor Stefano Sotgiu: Sardinia and HSP
 
  • Professor Carlo Casali: "Daisy", Italian HSP database 
   
11:00 Coffee break
   
11:20 Presentations:
 
  • Lori Renna Linton: Potato Pants event
 
  • Dottor Panza: Mutation in gene ALDH18A1 causing SPG9A
 
  • Hermien Remmelink: Eurordis Summer School 2017
   
13:00 Lunch

  

 

 

 

 

 

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Euro-HSP GA 2017

June 17, 2017 - 14:30 to 18:00

 

Place: Hotel Catalunya, Via Catalogna 22, Alghero (SS) Italy


 

Agenda:

1.           Welcome                                                                           
2. Annual report from the president (Dorthe)
 
  • Activity report 2016-2017
3. Annual report from the treasurer (Martin)
 
  • Report for 2016
  • Budget for 2017
4. Report from our scientific board (Jean)
5. Reports from conferences
 
  • SPATAX in Paris, France (Jean)
  • CEF meeting in Paris, France (Dorthe)
  • RD-Connect/PAC meeting in Berlin, Germany (Dorthe)
  • EURORDIS membership meeting in Budapest, Hungary (Dorthe)             
6. Elections: Board og Directors
 
  • President (2 years) (The BoD recommends Marina)
  • Vice-president (1 year) (The BoD recommends Hermien)
  • Treasurer (2 years) (Martin accepts re-nomination)
  • Secretary (1 year)
  • Scientific advisor (2 years) (Jean accepts re-nomination)
  • The vacant seat on the board (2 years)
  • Webmaster
7. Strategic Action Plans for the future
 
  • The importance of a realistic action plan (Rob)
  • HSP Best Practices Manual
    Jean
    Hermien
  • GA and Annual Meeting 2018
  • New members: enlargement of the Federation to all European countries
  • Funding: Pharma companies, Eurordis Grant, ?
8. The use of logos. Questions from Frank (Australia) (Dorthe)
9. Other business
10.

Evaluation of Annual Meeting and GA

   
  Chair of the meetings: Rob Camp, Spain

 

 

 

 

 

 

 

 

 

 

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