There is a multilingual HSP forum, RareConnect, maintained by EURORDIS. You can request for the translation of the messages to your language.
The Spanish AEPEF has two distribution lists in Spanish:
At http://hsp-info.eu/ (maintained by the German HSP Group) you also can find some forums:
- English HSP Forum
- Deutschssprachiges HSP Forum
- Norsk forenig for Arvelig - Spastik Paraparese / Aaksi (NASPA)
- Dansk HSP Forum
In Facebook you can find also: