Physical therapy for people diagnosed with HSP
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There is an HSP forum, RareConnect, maintained by EURORDIS. You can request for the translation of the messages to your language.
Eurordis: The voice of Rare Disease Patients in Europe
https://www.eurordis.org/de
Adam Lawrence's Blog called : A Journey to HSP/FSP:
https://hspjourney.blogspot.com
European Reference Network for Rare NeurologicalDiseases (ERN-RND) http://www.ern-rnd.eu/
The US HSP Foundation:
https://sp-foundation.org