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Get Involved

There is an HSP forum, RareConnect, maintained by EURORDIS. You can request for the translation of the messages to your language.

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The US HSP Foundation: https://sp-foundation.org
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Adam Lawrence's Blog called : A Journey to HSP/FSP:https://hspjourney.blogspot.com

European Reference Network for Rare NeurologicalDiseases (ERN-RND) http://www.ern-rnd.eu/

Eurordis: The voice of Rare Disease Patients in Europe https://www.eurordis.org/de