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Get Involved

There is an HSP forum, RareConnect, maintained by EURORDIS. You can request for the translation of the messages to your language.

Rareconnect logo

The US HSP Foundation:
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Adam Lawrence's Blog called : A Journey to HSP/FSP:

European Reference Network for Rare NeurologicalDiseases (ERN-RND)

Eurordis: The voice of Rare Disease Patients in Europe