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Research

Disclaimer:

This excellent video focuses on someone who has been diagnosed with SPG4 so it won't be applicable to everyone, considering that, so far, over 90 genes have been identified with HSP. He also mistakenly says that HSP is a rare disease that affects the lower motor neurons. However, it affects the upper motor neurons.

Time Stamps:

  • 0:00- 1:00: Intro
  • 1:00 – 2:30: Part 1, What is HSP
  • 2:31 – 4:49: Part 11- The Genetics of HSP
  • 4:50-9:47: Part 111- Jason & HSP

Here is a link to clinical trials that have been completed or are recruiting: CLICK HERE

Articles on HSP

Understanding HSP disease in brief - here

Promising treatment found for SPG5 HSP - here

SPG7 more common in Australia - here

Next generation gene testing telling a story - here

Hereditary spastic paraplegia from 1880 to 2017: an historical review - here

Chronic Pain - here

Final QA with Craig Blackstone NIH on drug trials here

Management of HSP - here

Recherce HSP publications articles - here

Clinical trials designs - here

Next generation molekylar diagnoses Italy - here

Perspective on geomics on HSP - here