Research
Disclaimer:
This excellent video focuses on someone who has been diagnosed with SPG4 so it won't be applicable to everyone, considering that, so far, over 90 genes have been identified with HSP. He also mistakenly says that HSP is a rare disease that affects the lower motor neurons. However, it affects the upper motor neurons.
Time Stamps:
- 0:00- 1:00: Intro
- 1:00 – 2:30: Part 1, What is HSP
- 2:31 – 4:49: Part 11- The Genetics of HSP
- 4:50-9:47: Part 111- Jason & HSP
Here is a link to clinical trials that have been completed or are recruiting: CLICK HERE
Articles on HSP
Understanding HSP disease in brief - here
Promising treatment found for SPG5 HSP - here
SPG7 more common in Australia - here
Next generation gene testing telling a story - here
Hereditary spastic paraplegia from 1880 to 2017: an historical review - here
Chronic Pain - here
Final QA with Craig Blackstone NIH on drug trials here
Management of HSP - here
Recherce HSP publications articles - here
Clinical trials designs - here
Next generation molekylar diagnoses Italy - here
Perspective on geomics on HSP - here