Welcome to
EURO-HSP

EURO-HSP is a Federation of national  associations related with a Rare Disease called Hereditary Spastic Paraplegia or Strümpell-Lorrain disease. The federation was made up during the project Rare! Together from EURORDIS. 

NEWS from EURO-HSP

Project euroSPG11/15 started

By March 2025 Euro-HSP started supporting a new project for development of cure which focuses on SPG11 and related subtypes. This extends our…

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Adolf Struempell Prize Winner 2025: Mrs. Alzhraa A. Ibrahim, PhD

Euro-HSP is pleased to announce that the Adolf Struempell Prize 2025 will be awarded to Mrs. Alzhraa A. Ibrahim, PhD

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Adolf-Strümpell-Prize 2025

Best Paper Award Adolf-Strümpell-Prize 2025 for HSP-Therapy

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euroSPG4 Project - Summer Update 2024

The euroSPG4 consortium successfully completed the first project year and started the second. Time for providing an update …

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Euro-HSP Welcomes Germany

We proudly continue in puzzling a strong HSP-patient together

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HSP Patient Journey developed by Adam Lawrence and Lori Renna Linton

Patient Journeys  are info-graphical overviews that visualize patients’ needs in the care of their rare disease. Because Patient Journeys are designed…

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EVENTS & MEETINGS

Euro-HSP Convention Copenhagen August 23 & 24, 2025, Copenhagen (meeting for representatives of national patient associations).

 

On Tuesday, September 16, 19: CEST we provide an online Up-Date on the euroSPG4 and euroSPG11/15 projects in German language. Please save the date. We will provide a link timely ahead of the meeting. Download announcement (in German).

 


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„Vital to quality of life is the ability to work together, learn from each other, and help each other grow”

Support our current
euroSPG4 project

We would be pleased and grateful for a donation for our ongoing euroSPG4 project. 

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