Welcome to
EURO-HSP

EURO-HSP is a Federation of national  associations related with a Rare Disease called Hereditary Spastic Paraplegia or Strümpell-Lorrain disease. The federation was made up during the project Rare! Together from EURORDIS. 

NEWS from EURO-HSP

Euro-HSP Welcomes Germany

We proudly continue in puzzling a strong HSP-patient together

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Adolf Struempell Prize Winner 2024: Lotte van de Venis

Euro-HSP is pleased to announce that the Adolf Struempell Prize 2024 will be awarded to Mrs. Lotte van the Venis

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Adolf-Strümpell-Prize 2024

Best Paper Award Adolf-Strümpell-Prize 2024 for HSP-Therapy

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HSP Patient Journey developed by Adam Lawrence and Lori Renna Linton

Patient Journeys  are info-graphical overviews that visualize patients’ needs in the care of their rare disease. Because Patient Journeys are designed…

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EVENTS & MEETINGS

31.07.2024 euroSPG4 – scientific zoom

Euro-HSP supports the development of Spastin recovery therapy for HSP/SPG4 within the project euroSPG4. On Wednesday July 31, 7 p.m. European Central Summer Time we are pleased to welcome our principal investigator Dr. Cinzia Rinaldo for presenting the scientific results of year one to a lay audience. Please save the date now!

We will provide a link timely. 

 


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„Vital to quality of life is the ability to work together, learn from each other, and help each other grow”

Support our current
euroSPG4 project

We would be pleased and grateful for a donation for our ongoing euroSPG4 project. 

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